Teguh Haryo SasongkoRESEARCH · ETHICS · EVIDENCE
ABOUT

A scientist’s curiosity.
A concern for equity.

I am an Indonesian academic based in Malaysia, working across rare diseases, genomic medicine, research ethics, and evidence synthesis.

Portrait of Teguh Haryo Sasongko

How the questions evolved

I am medically trained and work as an academic researcher and educator.

I trained in medicine at Universitas Gadjah Mada and completed my PhD in Medical Sciences at Kobe University under the Japanese Government’s Monbukagakusho Scholarship. My earlier research examined the molecular genetics of rare inherited disorders, including spinal muscular atrophy, Duchenne muscular dystrophy, and tuberous sclerosis complex.

That foundation continues to inform my work. Increasingly, I ask how health systems decide what evidence to generate, whose needs receive attention, and how research can be translated ethically and equitably into practice.

I value collaborations that bring together scientific methods, ethical reasoning, policy experience, and the knowledge of patients and communities.

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CURRENT RESPONSIBILITIES

Associate Professor of Physiology

School of Medicine, IMU University

Deputy Director for Consultancy, Laboratory Services, and Business Development

Institute for Research, Development, and Innovation (IRDI), IMU University

Member, Interdisciplinary Scientific Committee

International Rare Diseases Research Consortium (IRDiRC) · September 2026–September 2029

Lead Regional Editor, South & Southeast Asia

Routledge International Handbook of Planetary Health · In development

Co-Chair, Intellectual Property Committee

IMU University · Since September 2023

SELECTED MILESTONES
2003

Medicine

MD, Universitas Gadjah Mada, Indonesia

2008

Molecular genetics

PhD in Medical Sciences, Kobe University, Japan

2014–

Evidence for a wider public

Leadership of Cochrane Malaysia’s Bahasa Malaysia Translation Project

2016

Biomedical ethics & public policy

JSPS visiting research fellowship, Osaka University

2025–26

Ethical research priorities

GFBR fellowship on rare inherited disease research priority-setting in LMICs

For collaborators & event organisers

Dr Teguh Haryo Sasongko is Associate Professor of Physiology at IMU University and Deputy Director for Consultancy, Laboratory Services, and Business Development at IRDI. He serves on the IRDiRC Interdisciplinary Scientific Committee (September 2026–September 2029). His work connects rare disease research priorities, climate–health equity, genomic ethics, and evidence synthesis, bringing academic, policy, industry, and community perspectives to overlooked health needs.

LET’S CONNECT

Good work begins with a conversation.

I welcome complementary perspectives and collaborations across research, policy, practice, and communities.

Start a conversation ↗