Disease & evidence
Molecular genetics, rare inherited disorders, systematic reviews, and Cochrane evidence synthesis.
Better questions.
More equitable evidence.
My research connects disease-specific knowledge with the ethical and institutional questions that shape whose needs are addressed.
01 / EVIDENCE & EQUITYWhose research needs
Rare diseases in
Whose research needs
get priority?
Ethical priority-setting for rare diseases, with particular attention to low- and middle-income settings.
Explore the research ↗02 / CLIMATE & HEALTHRare diseases in
a changing climate
Developing research at the intersection of rare diseases, climate–health, and equity.
Explore the research ↗The perspectives I bring
Ethics & governance
Research priority-setting, informed consent, genomic equity, and the responsibilities of research institutions.
Translation & practice
Knowledge translation, public communication, health policy, and responsible research innovation.
Genomics in its social context
My comparative work on national genome programmes in Malaysia and Indonesia explores how societal questions arise and are negotiated as genomics becomes part of health systems. It connects ethical, legal, and social implications with trust, participation, governance, and equitable access.
Read my work on ASEAN genomic solidarity ↗People’s needs shape the questions.
Understand neglected needsGenerate & assess evidenceInform policy & practice
Ethical reasoning and collaboration run across each stage. I am interested in working with people whose methods and experiences extend what any one discipline can achieve.
LET’S CONNECT
Start a conversation ↗Bring a different perspective.
I welcome complementary perspectives and collaborations across research, policy, practice, and communities.