Rare diseases are an overlooked dimension in climate–health adaptation
Sasongko TH. Nature Climate Change
Published 19 October 2026. A Comment on including rare diseases in climate–health adaptation.
A foundation of evidence.
A widening conversation.
Selected published scholarship, newest first, across rare diseases, climate–health, evidence synthesis, and genomic ethics. Explore the full publication record through my researcher profiles.
Ethical and Shariah Considerations in Contemporary Genetic Practices: Where Should the Limits Be? A Thematic Analysis
Nik Hassan NN, Sasongko TH, Yaacob NM, Bakar M. IIUM Medical Journal Malaysia
Published 1 October 2026 · Volume 25, issue 04. A qualitative study of ethical and Shariah perspectives on genetic practices in Malaysia.
Navigating medical authority and fatwa in genetic decision-making: an empirical bioethics study in Malaysia
Bakar M, Sasongko TH, Yaacob NM. BMC Medical Ethics
Published online 9 September 2026 (early publication; final version pending on the publisher site). Examines medical and religious authority in genetic decision-making.
The ASEAN genome consortium: advancing equitable precision medicine through regional solidarity
Sasongko TH, Gunadi, Hoh BP, Minari J, Soew SW, Shotelersuk V. The Lancet Regional Health – Western Pacific
Explores regional solidarity as a basis for equitable precision medicine.
Bringing Evidence to Life: Cochrane Evidence Translated for Malay-Speaking Population
Sasongko TH. Health Evaluation and Promotion
Connects evidence translation with public access to research.
Rapamycin and rapalogs for tuberous sclerosis complex
Sasongko TH, Kademane K, Chai Soon Hou S, Jocelyn TX, Zabidi-Hussin Z. Cochrane Database of Systematic Reviews
Synthesises intervention evidence for a rare inherited condition.
Social and communicative functions of informed consent forms in East Asia and beyond
Yoshizawa G, Sasongko TH, Ho C-H, Kato K. Frontiers in Genetics
Examines informed consent as a social and communicative practice.
Rapamycin and its analogues for TSC-associated tumors: systematic review and meta-analysis of non-randomised studies
Sasongko TH, Ismail NFD, Nik Abdul Malik NMA, Zabidi-Hussin ZAMH. Orphanet Journal of Rare Diseases
Examines evidence from non-randomised studies in tuberous sclerosis complex.
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