Rare diseases.
Climate and health.

Climate resilience must include uncommon needs.

What does climate adaptation look like when a person’s health depends on care that cannot easily be interrupted or replaced? This question sits at the heart of my developing research programme on rare diseases, climate–health, and equity.

My starting point is that preparing for a changing climate should include people whose needs are easily missed in population-wide planning. The aim is to understand what must keep working for them—and how health systems and communities can protect it.

From a shared concern to researchable questions

I am interested in building a collaborative programme around three connected questions:

• Understand vulnerability. How do climate hazards interact with disease-specific needs, everyday living conditions, and access to care? Where are the most consequential gaps in evidence?
• Protect continuity. What would help sustain essential treatment, equipment, specialist support, and care networks during disruption? Which approaches are feasible in different settings?
• Make adaptation fair. How should overlooked needs inform adaptation priorities, investment, and accountability—and how can patients and families help shape those decisions?

These are questions for joint investigation. I hope to connect evidence synthesis, empirical research, ethical analysis, and practical work with communities and health services, with particular interest in Malaysia, Southeast Asia, and settings with constrained resources.

The ambition is to turn an overlooked concern into evidence and workable approaches that can be developed, tested, and improved together.

Help shape the next study.

I welcome researchers, clinicians, patient organisations, public agencies, and partners working on climate adaptation or continuity of care. Contributions could include lived experience, climate and health methods, disease expertise, health-service partnerships, or an interest in developing a joint funding proposal.

A collaboration could begin with an evidence review, a study of patient and family experiences, a comparison across settings, or the co-design and evaluation of a practical adaptation approach. These are potential starting points for discussion.

If this connects with your work, tell me the question you would like to explore, the community or setting you work with, and what we might bring together.